In case you didn’t already know, October is international Dysautonomia Awareness Month. Yes, I am posting this article on the tail end of October this year, but I figured that late is better than never when it comes to spreading awareness about a condition that affects up to 3 million people in the U.S. (including your’s truly).
Healthy vs. Chronically Ill “Batteries”
If you’ve spent any time in the chronic illness community (or if you’ve spent any time reading my blog–thank you, by the way) then you may be familiar with the Spoon Theory.
And while the Spoon Theory is a decent analogy to help non-sick people understand the energy crisis that Spoonies live with every day, there’s actually a better analogy that I’ve seen floating around the internet lately.
Instead of counting “energy spoons” you can think of your personal energy and ability levels as a phone battery.
Treatment fatigue is the basically a “treatment-induced burnout” that many Spoonies experience after years of medical testing, procedures, and most notably, pills.
“Healthy people have many dreams for the future, but sick people only have one dream…to be healthy.”
“Health is a crown that the healthy wear but only the sick can see.”
I think we can all agree that preparing for the holidays can be pretty stressful…
You have to scavenge Pinterest for decorating ideas, find a Christmas tree, fight off other shoppers at the mall, buy the right presents, nab the perfect dress, stress about your waistline, mentally prepare to deal with your extended family, and make sure your outside Christmas light show gives the Jones’ down the street a run for their money.
You have to do all this and work a job and take care of the little rugrats and maintain your own sanity. It’s a lot of work.
But now imagine that you have to do all these things but you have no energy, you’re in pain, and you’re (most likely) broke as a joke.
There are so many chronic pain conditions out there that I can’t even name half of them.
From MS to Lupus, cancer, chronic migraine, fibromyalgia, arthritis, CPRS, EDS, neuropathy, trigeminal neuralgia, lung diseases, ankylosing spondylitis, Lyme disease, ulcerative colitis, IBS, pelvic pain syndromes, and the list goes on.